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Tuesday, March 2, 2010

the waiting game

We are waiting for Ashleys' test results, and hoping they hold the answer to her slow recovery. She is still weak and dragging. They have even checked for anemia. My sister Kathy has offered to accompany me on a spa trip. I haven't been alone with my older sister in years...

Bens' test results came back yesterday, and he is fine, didn't even glow in the dark, i was so disapointed. I wanted to see if i could read by his radioactive glow.

Kyles' culture came back positive for MRSA, and Ashley has some weird aerobic, and anaerobic bacteria, that you never find in this situation. Highly unusual, actually never seen it before, no idea how she got it, it doesn't live on the skin like Staph, no answers...probably why we can't get her well.

It causes me great pain and stress to see my happy girl, like this. Ashley has always been such a joy, and her pain and grief, and now depression are creeping over my house...she is lonely, and angry, she is afraid she will not graduate, she came downstairs crying about 1:30 a.m. she is so frustrated. She doesn't have the energy to return to school, they have sent an outline of work, but thats' it. She is in yearbook class, and if she doesn't complete her pages, she fails.

I really love sympathetic ,helpful teachers and administrators, at least i would if i ever met any.....

As we live with such unusual circumstances, life still goes on. My never ending battle with the laundry continues. My floors oh how they still need mopping. After 4 inches of snow on Fri, then the additional mud, I don't know what color my tile is, gray, mud, sludge is my best guess.

Alexandra doesn't want me to ever forget i have a 2 year old in the house, so while i was frantically trying to find the phone(Ashleys' nurse was calling, and Lola hid it in the closet), my 2 year old took advantage of my distraction to bathe 2 of her Dora dolls in the toliet, and pour shampoo in their hair...someone stuck conditioner in the freezer, just to see what happens to it...Christian and Jonathan decided to spray paint their guys black, and used my golf clubs to crack ;pecans....

Do you have any idea what it does to golf clubs when you use them to crack pecans on cement? I guess I will not be swinging any clubs this spring either....

Christian refuses to grow, and still weighs 29lbs at 4! He is so tiny, it causes this gnawing kind of worry. He has seen an endocrinologist, and is scheduled to go back. I suppose it is the fear of the unknown. Kyle at 5'5" insists he is just fine, and i am worrying about nothing, but i have found out the hard way, inner voices often ring the truest.

While he may be my smallest child, he more than makes up for in it flat out charm. He oozes it. He has beautiful long, blond curls, enormous blue eyes, and black lashes. He is frankly beautiful, and twice as mischevious....I never know what he will think of next, and my heathen baby is right on his heels.

I officially have 2 children in their 20's now, Kyle turned 20 on March 1st, and we are having his birthday dinner tomorrow. It is odd, to have sons in their 20's , 2 teenagers, 2 pre-teens, a 6 year old, and 2 toddlers...

3 girls, mellow missy, diva, and drama queen, 6 boys that range from energetic to frentic, and2 very tired parents, that are no longer in their 20's. That is probably why we are so tired...

1 comments:

momoflots said...

I know that this is a bit selfish but your post makes me feel so much better. I have had a bit of gnawing worry about my ten year old - he is very short and is growing sooo slowly - all hie friends tower over him. He seems super healthy but it worries me as well. (Of course - my hubby tells me that I worry for nothing - I never even made it to 5 feet - so he takes after his momma) But I also worry about what it will be like for him to be a short guy in the world - but since your Kyle is 5'5" and has a sweetie and is getting along fine - you've offered me a lot of encouragement - in the midst of your worry, I know. I am super glad to know Ben's results came back fine and i am praying that the results of Ashley's tests will offer some solution to her illness!!! GO TO THE SPA!!! YOU NEED IT!!!! I will be with you in spirit!!!!